Don't Even Know What to Title This...

Something hasn't been right with our little Lynneah. I couldn't put my finger on exactly what, but my gut told me something was wrong. I struggled with how to even describe what was going on. She kept turning plum purple when she would cry, then she would kind of grunt while she was calming down, then she would have huge amounts of bubbles come out of her mouth as she relaxed again. It was a bunch of weird stuff that I couldn't connect to each other. Then I noticed her little belly button stump was bleeding. That was the defining weird thing that made me call the Pediatrician. We got in the same day. Belly Button was fine. He agreed that these were a bunch of odd symptoms and suggested we treat for acid reflux and see if there was any improvement. She was doing pretty well then had another episode. I was just getting her calmed down when the Pediatrician's nurse called to see how she was doing today. I had taken note of the progression of the episode this time and explained what had just happened. The Dr called back a while later and said we should go ahead and take her to the pediatric ER for an upper G.I. tract scan. When we arrived her oxygen levels were in the low to mid 80's (rather than the 98-100% she should be at) which led to an x-ray and lots of activity in the ER. The x-ray came back and showed a hernia in her diaphragm. The entire left side of her chest cavity is filled with intestine pushing her heart and lungs to the right side of her chest. Yeah, while the Drs were talking about what they saw I caught that her little heart is on the WRONG side. She is now in the NICU till she can get into surgery tomorrow or Thursday. I thought she might have to stay for a couple of days after the surgery then the nurse said that no we were looking at weeks in the NICU after surgery. I kept myself together till the drive home...weeks...weeks...not good. Tomorrow she'll be two weeks old. I hate that she's there and not here. Stephen stayed tonight with her because every time I held her she wanted to nurse and she's not allowed to do that till after surgery. It's killing me. I'm so glad my pump got here. That's what I'll be doing for the next several weeks. She's such a dainty little nurser pumping is really not fun, but I want her getting that when she can eat again. I'm glad we have insurance again. I have to sleep now so I can get back to the hospital for the meeting with the surgeons early in the morning. Big breath...pray for her...and her momma that's a big mess.

She had a very long day! It took two tries for the IV, then they had to draw blood, then they put a tube down her throat all the way to her stomach, she can't nurse, and finally went to sleep from the exhaustion of it all. Oh, my sweet girl hang in there you'll feel better soon.